Dear colleagues and friends,

We are honored to have been able to unite 3,000+ colleagues this year from around the world for our virtual event, “Moving the Needle on ALS & Neuromuscular Disorders,” on June 21^st, 2022. Together we were able to enhance awareness and provide a global stage for key stakeholders to connect and collaborate to overcome barriers to finding cures for these devastating rare diseases.

This is our 9^th episode of our “Collaborations That Transform” series. At WuXi AppTec, we are dedicated to providing a platform to catalyze transformational change for patients.

Special thanks to our more than 20 distinguished speakers, and to our supportive partners: ALS Association, Muscular Dystrophy Association, Motor Neurone Disease Association Singapore, and Beijing Oriental Rain ALS Care Center.

You are welcome to watch this event on-demand here: https://youtu.be/ITcuG6oD_KM

Thank you again, and make sure to follow us on Twitter and LinkedIn, and visit our WXPress website to stay up-to-date on upcoming WuXi AppTec news and events.

If you have any questions, please contact us at wuxiforum@wuxiapptec.com. 

AGENDA (The time below is AM, Pacific Daylight Time | Virtual via Zoom)

8:00 Welcome

Hui Cai, Program Chair, VP & Head of Content, WuXi AppTec

Calaneet Balas, President & CEO, The ALS Association

Lin Kah Ooi, Founding President, Motor Neurone Disease Association Singapore

8:10 The Unmet Needs in Neuromuscular Disorders

Carsten Bönnemann, Senior Investigator, Neuromuscular & Neurogenetic Disorders of Childhood Section, NINDS

Matthew Harms, Associate Professor of Neurology, Institute for Genomic Medicine, Columbia University

Moderator: Sharon Hesterlee, Chief Research Officer, Muscular Dystrophy Association

8:40 Spotlight on ALS

Kuldip Dave, SVP of Research, The ALS Association

Sabrina Paganoni, Co-Director, Neurological Research Institute at Massachusetts General Hospital; Physician Scientist, Healey & AMG Center for ALS

Jeffrey Rothstein, Director of Brain Science Institute, Director, Robert Packard Center for ALS Research, Johns Hopkins University

9:10 In the Pipeline

Neil Cashman, CSO, ProMIS Neurosciences; Professor Emeritus, University of British Columbia

Michael McGrath, UCSF Emeritus Professor of Medicine; CSO & Founder, Neuvivo

Robert Scannevin, CSO, Verge Genomics

Fernando Vieira, CEO & CSO, ALS Therapy Development Institute

Moderator: Murali Gopalakrishnan, Global Head, Neuroscience Search & Evaluation, Corporate Strategy Office, AbbVie

9:50 Challenges and Opportunities in New Modalities

Jim Burns, CEO, Locanabio

Clive Svendsen, Professor & Executive Director, Board of Governors Regenerative Medicine Institute

Moderator: Bibhash Mukhopadhyay, Managing Partner, Sound Bioventures

10:20 The Future of Genetic and Personalized Medicines

Michael Snyder, Professor & Chair, Department of Genetics; Director, Center for Genomics and Personalized Medicine, Stanford University

10:25 Closing Remarks

Richard Soll, Head of Boston Office and Senior Advisor of Strategic Initiatives, WuXi AppTec